Tag Archives: Heidi

Pray for Heidi Day #1: Vision

Scripture passages from Luke 18, Isaiah 28, Isaiah 42

Months ago, Heidi’s blood pressure went crazy, causing an eye bleed which gave her a blind spot in one of her eyes. It has shown mild improvement but it’s still there. What does this mean for Heidi? Besides challenges to depth perception and driving, she can’t read very well. And if she tries, she gets terrible headaches. And Heidi loves to read! For anyone who, like me, calms down every night by reading, the idea of that simple pleasure being taken away, and for so long, is horrible. Reading, for me, can be a coping strategy. A place to escape, and stop thinking about myself, and lay my worries down. And I desperately want Heidi to have this one small pleasure back.

God, I’ve been praying for Heidi’s eye to be healed for a long time. You haven’t done it yet. But I know you can. I pray that you will.

You’ve let the bad news fall on Heidi, stroke after stroke. It’s beaten her down. Her eye, in the scope of all the other huge problems, may seem like a small thing. But I pray that you’ll give it back to her, fully functional, as a gift. Clear up the blind spot. Make it go away entirely.

God, when I first had this idea of five days of public, open prayer for Heidi, immediately my mind started playing games. Maybe with more people praying we can force God’s hand. But it’s not about controlling you. Maybe we can annoy you into doing what we want. No–you’re infinitely patient and nothing like the unjust judge in the parable about the insistent widow. Maybe if I give you a stage, you’ll perform. Wow, that’s a twisted view of you. But God, hear the desperation under these mind games. I just want you to act, and my mind is trying to find a way to twist and bend and get around the fact that . . . I can’t make you do anything. There’s no strategy or manipulation or formula that I can wield to control you. You’re God.

But. You love me. You’ve given me unfettered access to your ear. You’ve said you’re my father, and that I can come to you any time, no mind games necessary. I can just ask, simply, like a child. Like my baby Isaac does, when the thought strikes him, and he pipes up in his sweet little voice, “More cake?” He doesn’t plan or strategize or threaten or butter me up. He just looks at me with his big blue eyes and says, “More cake? More cake? More cake?”

So I’m laying aside all of my weird, controlling thoughts. I come to you like Isaac comes to me, not understanding your will or your ways very well. But asking anyway, again and again.

For the Lord will rise up […] to do his deed—strange is his deed!—and to work his work—alien is his work!

I come to you, knowing that I cannot understand you–except what you reveal of yourself. And I cannot fathom your plan–except when you tenderly open my eyes to it. But more often it feels like you’re leading me blind, and that only trust can propel me to take the next step, and even that trust sometimes fails and I come to a standstill, stuck and afraid and despairing. You must lead, because this is a path I never would have chosen.

I will lead the blind
by a road they do not know,
by paths they have not known

I will guide them.
I will turn the darkness before them into light,
the rough places into level ground.
These are the things I will do,
and I will not forsake them.

I come to you with my hands lifted, empty. Empty of power, empty of control, but lifting up to you my love for my sister, which cries out constantly in my heart make her better.

Fill our empty hands with good things. Let one of those good things be Heidi’s sight. Give it back to her as a comfort, as a gift, as a sign of your care, not because we can twist your arm by organized prayer, not because you listen to the voices of many more than the voice of one, but because we have no one else to turn to. No one else who loves like you do, listens like you do, heals like you do.

So often, when I feel the burden of my powerlessness, I get mad. I cry and I swear and I rage. But this morning, I bring my powerlessness to you. You’re supposed to be strength in our weakness. You’re supposed to be the kind of God who comes into a hopeless situation where no one else could possibly save, and wins the victory. So show us that part of yourself.

I’m asking for miracles. Today, and the rest of the week. But the very grandest and most impossible-seeming thing I could ask is nothing to you. A mere thought of yours could sweep the universe into the dustbin–or bring the whole host of the dead back to life. I forget about how vast your power is sometimes. But just because it’s vast doesn’t mean it’s impersonal. It’s deeply personal. You say you know how many hairs are on our heads. You certainly know each drop of blood and each burst vessel that’s clouding Heidi’s vision.

As he approached Jericho, a blind man was sitting by the roadside begging. When he heard a crowd going by, he asked what was happening. They told him, “Jesus of Nazareth is passing by.” Then he shouted, “Jesus, Son of David, have mercy on me!”

Jesus, Son of David, have mercy on Heidi.

Those who were in front sternly ordered him to be quiet; but he shouted even more loudly, “Son of David, have mercy on me!”

Jesus, Son of David, have mercy on Heidi.

Jesus stood still and ordered the man to be brought to him; and when he came near, he asked him, “What do you want me to do for you?” He said, “Lord, let me see again.” Jesus said to him, “Receive your sight; your faith has saved you.”

God, my faith may be small, but I bring it to you, knowing that far from tossing aside the tiny seeds of faith, you nurture them, and grow them into big things.

My small faith says, Jenna, you’ve prayed for Heidi’s eye a ton of times and God hasn’t done anything. Just give up already. You can’t make him do it. And I can’t make you. So what am I supposed to say? I guess that I’m just asking. And waiting for your answer, hopeful and scared and excited and fearful all at once. Take this tiny faith. Don’t crush it. Here it is.

I am the Lord, that is my name; my glory I give to no other, nor my praise to idols.

God, you could heal her eye over time. And that would be fine–even great. But I pray that instead, you’ll do it all of a sudden. So that Heidi can take this story and share it with her doctors, that they may know that something unnatural is happening. Something that defies the rules of the world–because you wrote the rules of the world, and you can bend them and break them and do whatever you want. Bring yourself glory.

Immediately he regained his sight and followed him, glorifying God; and all the people, when they saw it, praised God.

Remove all effects of Heidi’s eye bleed, Jesus. For your sake, and for hers, and for mine, so that she can have more joy, and so that we can have joy too, in praising you as witnesses of your healing power.

Jesus, Son of David, have mercy on Heidi.

An unexpected feast

Scripture excerpts from Isaiah 45 and 46

I spent this past weekend with Heidi in the hospital. It was a rough one. She went in Thursday early a.m. with a fever of 105. They quickly found it was a bacterial infection caused by salmonella that had made her body go septic. By the time I got there Friday afternoon, she was stabilized, but far from recovered.

Over the next day, I struggled to see my sister this way: not just very, very sick and miserable, but also in the deep depression that has been plaguing her for the past months.

Heidi is a super caring person. Even during her hospitalizations, when very sick, she thanks the nurses, the custodians, the dietitians. She asks them about their lives. She connects with anyone and everyone who comes through her room. But not this time. This time, she was at various moments completely unresponsive. As in, a nurse would say something and she wouldn’t even answer. I’m still not sure how much of this was the depression and how much was her body still recovering from sepsis or being on a million meds, but it was scary to see.

I cried out to God on my bus ride to Madison, and at the hospital as I watched Heidi sleep, “please give Heidi something–some good news–some enjoyment–it doesn’t even matter what, as long as it means something to her.” And then, because I can’t leave well enough alone (and in case God was short on ideas), I suggested it could be great if she could just enjoy a few bites of something. For a long, long time, not only has she been nauseous, not only has she been on a super restrictive diet, but nothing tastes good. Between the chemo, creatinine and BUN overload from the kidneys’ failure to work, and antibiotics, her taste buds were no longer working and there was always a weird taste and coating in her mouth. Every bite took willpower. Meal after meal. Nothing was enjoyable.

Just give her one good thing, I prayed. Just one thing.

I listened as Heidi expressed to her doctor that she didn’t want to live anymore. She was tired of being in pain all the time. Tired of the bad news that has come blow after blow after blow, month after month, with no good turns. Tired and trapped and ready to be done.

I called a chaplain and prayed with her outside Heidi’s room. I tried to field interruptions to Heidi’s sleep at night. And all along, angry helplessness burned in my chest. Why have you abandoned Heidi? I screamed to God. Why are you far away when she needs you so much? How could you do this?

Then, Saturday morning, as if things weren’t bad enough, Heidi’s nightmare happened: flash pulmonary edema. Basically, within the space of about two hours she went from breathing normally to feeling like she was drowning, coughing up blood, and fighting for every breath. About fifteen medical professionals rushed into the room, and in a flurry of machines and shouted instructions, she was taken to the Trauma Care Unit, head lolling, unable to even speak. I followed, weeping. On oxygen, getting emergency dialysis to clear her body of the excess liquid, Heidi pretty much passed out, hunching forward every now and then to cough up more blood. I sat nearby. I lowered my face into my hands and wept, silent sobs shaking my body.

I was so angry. How dare you let this happen, God. Where are you? I thought you cared about us. I thought we were precious to you. Obviously we aren’t. Obviously you’ve tossed us away and forgotten. Why are you torturing her? Stop. Just stop.

All I wanted was for God to show up, in the flesh, so that I could rush at him and strangle him with my bare hands. I wanted to hit him, and hard. But I couldn’t. There was nothing to do but sit, and wait. Helpless, I remained in my chair, face in hands, tears hitting the floor while the dialysis nurse sat nearby, tapping away at her laptop, as if everything were normal and the world wasn’t falling apart in front of me.

The day went on. Heidi’s lungs started to clear. My Dad and I got a cafeteria lunch together. Heidi was able to get off oxygen and return to the 6th floor. She napped for a little while. I worked on a puzzle with my parents in the family lounge to give Heidi some alone time with her husband, Mike.

In the evening, Mike ordered Indian food for me and him. Heidi was awake, sitting up and looking more alert. The Indian food arrived; it smelled incredible.

“I think I want some,” said Heidi.

Oh. My. God. Heidi wanted food?

We didn’t care that it wasn’t part of her sodium and phosphate sensitive diet. She wanted it, she was getting it. And in what seemed like a blink of the eye, Heidi was back. Cheerful, interacting. The depression had lifted.

I have never seen such a radical turnaround. From that morning, seeing her unresponsive in the TCU, to that evening, seeing her shovel down Indian food and smile, and even laugh–I can’t believe it.

Heidi does ballet stretches Sunday afternoon, after talking to her kids (first pic), listening to a sermon with me, and getting more dialysis.

God didn’t show up for me to wrestle. Or strangle. But he showed up. Give Heidi a couple bites that she can enjoy, I asked. But he gave her more than just a couple bites. He gave her a whole meal. And she had seconds.

Heidi’s still in the hospital. But her spirits are lifted. The Heidi we haven’t seen for a month and a half has returned. In the hour before I left Sunday afternoon to catch my bus back to Chicago, we had a dance party and shook it to some T. Swift.

Me looking ugly to enhance Heidi. Works every time.

And as I feel the painful two-hour distance between me and her, as I feel the fear of another downturn, as I feel the weight of her kidneys’ refusal to recover, I hold on as best I can to the promise I think God made us: that he will heal her. Which I made sure to mention in front of her primary care doc, as he looked on tolerantly–and dubiously. And I thought, show him, God.

Turn to me and be saved,
all the ends of the earth!
For I am God, and there is no other.
By myself I have sworn,
from my mouth has gone forth in righteousness
a word that shall not return:
“To me every knee shall bow,
every tongue shall swear.”

God, we have turned to you. Now save us! Save Heidi! Don’t let the words we think we heard from you fall to the ground with no fruit. Let those words spring up in glory. Let those words cause knees to bow–mine, her doctors’, her nurses’, and everyone who has heard her story.

Only in the Lord, it shall be said of me,
are righteousness and strength;
all who were incensed against him
shall come to him and be ashamed.
In the Lord all the offspring of Israel
shall triumph and glory.

God, I have been incensed against you. I’ve been so angry. I can’t wait to be ashamed of that! I can’t wait to come to you and say, “I was so wrong. Your plan was good. You didn’t cast us aside.”

Remember this and consider,
recall it to mind, you transgressors,
remember the former things of old;
for I am God, and there is no other;
I am God, and there is no one like me,
declaring the end from the beginning
and from ancient times things not yet done,
saying, “My purpose shall stand,
and I will fulfill my intention,”
calling a bird of prey from the east,
the man for my purpose from a far country.
I have spoken, and I will bring it to pass;
I have planned, and I will do it.

Yes God, do it. You spoke to many of us. Now bring it to pass!

Listen to me, you stubborn of heart,
you who are far from deliverance:
I bring near my deliverance, it is not far off,
and my salvation will not tarry;
I will put salvation in Zion,
for Israel my glory.

I know I’m stubborn of heart. I’m weak, God. I can’t look at my sister suffering and take it. I can’t see her in pain and be joyful. It makes me angry–at you. So bring your deliverance near. And soon. Don’t tarry. Put your salvation in Heidi and bring glory out of ugliness.

Glorify yourself, God. Let me be ashamed of my anger. Let me be one of those transgressors who doubted and who is proved so, so wrong.